catholic as hell
Nobody prefect Daniel San
October 7th 2 cm mass in right upper lung
December 9th CT Chest with contrast
December 22nd CT Head scan
December 29th Pulmonary test
January 13th CT PET Scan
January 21th Ultrasound organs
January 26th Biopsy
February 8th Biopsy Follow up - Adenocarcinoma Stage IIIC
Adenocarcinoma is a estrogen receptor (ER) positive Non Small Cell Lung Cancer (NSCLC)
February 17th Radiation Dr Caon phone
less than 10% change of "cure" with most risks rare but some 20% with resulting long term issues
life expectancy months to short years if adrenal gland involved then probably no radiation-?
February 22th Bloodwork for Dr Selina Wong
March 1st Medical Oncology Dr Selina Wong phone
Manage disease for (1) best quality of life and (2) long term survival
(Warburg) ketogenetic diet to optimize best standard of care
In decisions of equal benefit, chose the treatment with lower toxicity
20 days fasting every month
Current weight 220/100kg
Stop fasting at 190/86kg
Stop Fasting if glucose < 4.0 mm/l
Target Therapeutic Ketosis 3.0 - 7.0 mm/l
including a wide variety of things; all-embracing.
"her tastes are pretty catholic"
Ketosis is a process that happens when your body doesn't have enough carbohydrates to burn for energy. Instead, it burns fat and makes ketones to use for fuel.
Glucose Ketone Index: GKI = Glucose (mmol/L)/Ketones (mmol/L)
I will blood monitor glucose and keytone levels
I will fast for 4 days a week
TBD: I will request the lightest dose of radiation treatment with the best coverage
After five months there has been multiple tests but no treatment from the medical system. By phone, I agreed to 30 days of combined radiation and chemo. Treatment to begin sometime in March in Victoria and last for 30 days. Initial side effects are expected to last for an additional 30 days with a 20% risk of long term adverse effects. Less than 10% chance for a cure.
In December I began self treatment by beginning a (much) stricter ketogenetic (low carb) weight loss diet. To date I have lost 20 pounds. I have practiced intermittent fasting and short term 2-3 day water fasts but have been cheating with keto deserts after the evening meal. I followed a ketogenetic diet in 2017 and lost 50 pounds (270 to 220), regaining 20, which I have now lost.
All cancer cells share a common weakness referred to the Warburg effect: In oncology, the Warburg effect is a form of metabolism found in cancer cells which favors fermentation over the pathway used by healthy cells. Cancer cells are addicted to sugar. When you are in ketosis, cancer cells begin to starve and become apparent to t-cell defenses produced in the gut. This is referred to as starving cancer. and is considered an adjunct therapy.
Standard of Care Treatments
Diagnostic and treatment process that a clinician should follow for a certain type of patient, illness, or clinical circumstance.
I am scheduled for chemotherapy and radiation therapy phone consultations.
Most people need 4 to 6 cycles of treatment over 3 to 6 months of chemotherapy
People having conventional radical radiotherapy are likely to have 20 to 32 treatment sessions. Radical radiotherapy is usually given 5 days a week, with a break at weekends. Each session of radiotherapy lasts 10 to 15 minutes and the course usually lasts 4 to 7 weeks.
Immunotherapy. This uses drugs to rally your body’s own immune system to fight the cancer. Your doctor may use immunotherapy as a first treatment if surgery isn’t a good choice, or use it after chemoradiation.
Staging Status as of 2/6/2022
Adenocarcinoma Stage IIIC
Adenocarcinoma Stage IIIC
Adenocarcinoma makes up about 40% of lung cancers. It's most often found in the outer part of the lungs and grows more slowly than other types of lung cancer.
I have one or more tumors in the same lung. My cancer may have spread to lymph nodes. The cancer may be in certain nearby tissues but not in distant organs.
For stage IIIB, the average 5-year survival rate is 26%
Most cancers are not diagnosed before stage III.
Brain and organs appear to be clear. Lungs are Dry not Wet! That's very good!
A dangerous condition, ARDS—or wet lung—happens when the lungs are damaged by illness or injury and fill with fluid instead of air. This interferes with air flow in the lungs and oxygen transfer to the rest of the body. Organ failure and, in some cases, death can result.
Frankenstein Bench for the new CNC built out of other benches
It doesn't matter what you want. It matters what you get. I start immunotherapy in two weeks. That means that I am doing well. Things don't look any worst and some things look better. The standard of care treatments may kill you, but the cancer will for sure if you don't find your way through the process. Most people find out too late and the cancer has already spread throughout their bodies making survival much harder. I was lucky and continue to be except for the fact that I have lung cancer.
Today I learned that my lungs will always look bad after treatment, and that immunotherapy can trigger a considerable list of immune responses that can kill you quite quickly but that the most likely is a skin rash.
Three days after my last treatment I purchased a OneFinity CNC
see fluxPoint meditation benches at FLYBYcnc.ca.
Computer numerical control (CNC) is a method for automating control of machine tools through the use of software embedded in a microcomputer attached to the tool. It is commonly used in manufacturing for machining metal and plastic parts.
A real brain teaser, great distraction and opportunity for creative growth.
The question of purpose. It has now been 10 months since the initial x-ray and almost 4 months since I began treatment. First you collect as much information as possible, then you go into meditation, a path appears before you and you follow that path. While following the path you monitor your progress.
At this point I have not felt well for 4 months. The side effects of 6 weeks of radiation and chemotherapy followed by immunotherapy combined to the point where I wondered if I was going to continue at all much less then to the next scan in December 2022, still four months away.
I told Susan that regardless of the outcome of the scan, I doubted that I would continue treatment after that point.
Its a 12 step sort of deal as you go through the physical ups and downs and at every step you must reconsider whether what you are going through is worth the effort. Today was my third immunotherapy session and everything went quite well (six hours later), but that may change. A woman in her 40's suffered a panic attack and refused treatment. You mind your own business in the therapy room but the entire staff clustered around her and escorted her out of the room. This is not an adult only all inclusive! There are children and young mothers being treated.
December 13, 2022 CT Scan
Impression: Overall appearance would be compatible near complete treatment response.
This was news hoped for but better than expected.
So many other people, people with young families, two year old's screaming in the next cubicle never, never, never ever, hear this. Their condition worsens.
Mine did not.
Was it something I said? Some oath I swore to build some shrine, to take up some cause, to make some change, to never do it again?
just as I fall to my knees, wipe my brow and breath out "thank christ" is some big black thumb going to descend from the sky and squish me?
Ah! What a relief!
I can continue as if nothing has changed!
It's not all cookies and cream. Two weeks ago I did not think that I would continue treatment. I need to be on thyroid medication. Immunotherapy side effects are random and legion. Today I slept half the day. I use steroid cream everywhere it itches. It itches everywhere. I have lost most of my hearing in my right ear. My vision sucks. Who knows what's next.
the CT Scan was comprehensive: all my organs and viscera were examined and commented on. Cancers were all smaller or no longer seen. I said to my doctor that I'd be crazy to stop treatment. I am scheduled for 5 more months of treatment. My oncologist said a few more treatments, after that the last two wouldn't make much difference.
Nobody beats Cancer. Some people learn to live with it. That can change at any time. Nothing has changed, but I will never be the same, so everything has changed after all.
May 3rd, 2003
On March 9th, 2023, as my wife and I were preparing to leave the BC Cancer Treatment room in Campbell River, British Columbia, from across the treatment room, a cancer treatment nurse queried me regarding my medical records and allergies. I responded that I was allergic to Penicillin. She then asked “What about Statins?; Why didn’t I mention that allergy?” I replied that I had not mentioned that allergy because that would upset certain people, to which she replied “you mean, people like us?”
This was a public conversation. I did not initiate the conversation. My medical records are not for public consumption. This is not about statins.
This is about my right to privacy. I skipped my next treatment.
This is to request a meeting with your supervisor to review this issue.
FYI: Damned if you Do, Damned if you don’t
I took the maximum allowable dose of 80 mg Atorvastatin (Lipitor@Pfizer) from January 2006 until February 2017 when my prescription was changed to 20 mg of Rosuvastatin (Crestor@AstraZeneca).
I stopped taking all statins between 2016 and 2017. Why? Statin Induced Dementia and Statin Induced Myopathy. It makes a difference what type of statins you are prescribed. The results:
Improved emotional control
Improved cognitive abilities
No more blood clots
Medical Malpractice: Me Too!
By definition, I was tortured by the British Columbia Medical System. It was traumatic. I did everything I could to improve the medical system. My efforts to date have failed.